Outcomes in the UK

HIV Outcomes UK was launched in 2021 to improve health-related quality of life (HRQoL) of people living with HIV by embedding it as an equal outcome in clinical, academic and policy decision-making across all four nations of the UK. Led by National AIDS Trust, we have gathered a coalition of HIV experts to identify, prioritise and secure policy, practice and evidence-based change.

    • Dr Nicoletta Policek, UK Community Advisory Board (co-chair)

    • Professor Caroline Sabin, University College London (co-chair)

    • Richard Angell, Terrence Higgins Trust

    • Professor Jane Anderson, Homerton University Hospital and Fast Track Cities London

    • Dr Grace Bottoni, NHS England & Lewisham HIV GP Champion

    • Dr Carol Emerson, Belfast Health and Social Care Trust

    • Amanda Ely, Chiva

    • Emma Fish, ViiV Healthcare

    • Daniel Fluskey, National AIDS Trust

    • Professor Yvonne Gilleece, British HIV Association

    • Ian Jackson, NHS England

    • Darren Knight, George House Trust

    • Louise Logan, Gilead Sciences

    • Veronique Martin, UK Health Security Agency

    • Denis Onyango, Africa Advocacy Foundation and One Voice Network

    • Grant Sugden, Waverley Care

    • Dr Laura Waters, HIV Clinical Reference Group

    • Dr Adam Williams, Fast Track Cities Cardiff & Vale

Download our vision for the UK

Milestones in time

*

Milestones in time *

  • We led comprehensive, multi-method, community-driven research into the HIV voluntary sector which informed our report, ‘HIV services at the crossroads: the role of the voluntary sector and needs of communities’.

    A separate report was published to highlight the importance and needs of the voluntary sector in Scotland: ‘HIV services at the crossroads: Scotland’.

    The oral presentation of this research was awarded the Martin Fisher Award at the BHIVA Conference and our parliamentary launch event brought together key decision-makers in the UK's response and strengthened support for implementing the recommendations.

    We have used the report to inform and target our advocacy with key stakeholders across the UK, including government officials, local authorities and health boards.

    Contributing to the UK Government’s HIV Action Plan for England remains a top priority.

  • HIV Outcomes UK partnered with the All-Party Parliamentary Group on HIV and AIDS to host a parliamentary event on tackling inequalities and improving HRQoL.

    HIV Outcomes UK published, ‘Beyond the virus: prioritising the mental health of people living with HIV in Scotland’, with the Minister for Public Health and parliamentarians speaking at our launch event. The report gained strong cross-party support, with over 30 Scottish MPs supporting a parliamentary motion for the government to implement the recommendations.

    A new partnership was launched with Fast Track Cymru to publish ‘Living Well with HIV in Wales’, an evidence-based progress assessment report with recommendations that have enhanced scrutiny of the Welsh Government’s HIV Action Plan and informed strategic planning and budgeting. Aligned with our recommendations, the Welsh Government later confirmed funding for a national peer support programme.

  • HIV Outcomes UK published its vision document, calling for HRQoL to be embedded as an equal outcome in clinical, academic and policy decision-making across all four nations of the UK

    HIV Outcoms UK published a report on HIV and inequalities, exploring how the NHS’s approach to address health inequalities can be applied to the HIV response.

  • HIV Outcomes UK was founded with the Steering Group bringing together diverse leaders from the UK’s HIV response. The group developed a workplan with four key areas:

    • HIV care engagement, integration and coordination

    • Stigma as a barrier to care

    • Mental health

    • Information, data and confidentiality

  • The need for HIV Outcomes UK emerges from a series of roundtable meetings chaired by Professor Jane Anderson that brought together key stakeholders in the UK’s HIV response to explore how to improve HRQoL.

 Connect in the UK