Events
We believe that progress in HIV policy, research and care depends on collaboration and shared knowledge. Our events bring together policymakers, researchers, clinicians, patient advocates, and industry leaders to exchange insights, showcase evidence, and drive concrete action at the European level.
From high-level policy discussions to expert workshops, each event is designed to advance better long-term health outcomes and quality of life for people living with HIV. Explore our upcoming and past events to see how we are shaping the HIV policy agenda across Europe.
Upcoming Events
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Upcoming Events *
HIV Outcomes at the 25th International AIDS Society Conference
HIV Outcomes hosted a multi-stakeholder roundtable discussion titled "Fostering Change in Policy and Clinical Practice in Europe" during AIDS 2024 in the Silver Zone. The session featured contributions from several Steering Group members, as well as from Prof. Jane Anderson, HIV Outcomes’ former Co-Chair and founder, and UK Member of Parliament David Mundell. The recently launched HIV Outcomes Call to Action was presented during the session.
Speakers explored strategies for advancing policy and clinical practice across Europe to improve the health-related quality of life (HRQoL) of people living with HIV, reflecting on HIV Outcomes Call to Action which urges EU policy makers to recommit to ending the HIV epidemic in light of the approaching deadline of meeting the United Nations Sustainable Development Goal 3.3 by 2030.
The discussion was in line with the 2022 HIV Outcomes Policy Asks, covering the following key elements:
Comorbidity prevention, screening, treatment and management
Ageing with HIV
Measurement of person-reported outcomes (PROs) & monitoring HRQoL
Combatting stigma and discrimination
Key takeaways
HIV Priority in EU Policy: The event highlighted that HIV was emphasised as a crucial priority on the EU policy agenda, ensuring it competes effectively with other health issues.
Addressing Stigma and Discrimination: It was stressed that European governments needed to tackle stigma and discrimination against people living with HIV to enhance mental health and service accessibility.
Integrated Healthcare Services: The importance of comprehensive services was underlined, aiming to address the comorbidities of people living with HIV and integrating their needs into broader healthcare planning.
Community Involvement: The event underscored the necessity of meaningful involvement from HIV communities for effective management and achieving concrete outcomes.
Funding and Structural Changes: Adequate funding and the establishment of a new framework for partnership between governments and HIV communities were identified as essential for improving service delivery.
Diverse Community Needs: The discussion emphasised the need for targeted interventions to address the varied needs of people living with HIV, particularly focusing on closing data gaps, especially concerning women.
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Mario Cascio, Founding member of iCOPe HIV initiative and HIV Outcomes Co-Chair
Caroline Sabin, Professor of Medical Statistics and Epidemiology at University College London and HIV Outcomes Co-Chair
David Mundell MP, Member of Parliament for Dumfriesshire, Clydesdale and Tweeddale, UK
Nicoletta Policek, UK Community Advisory Board Chairperson, Executive Director at European AIDS Treatment Group (EATG), and HIV Outcomes UK Co-Chair
Prof. Jane Anderson, Consulting Physician at Homerton Healthcare NHS Foundation Trust
James Cole, Senior Policy, Research & Influencing Manager at National AIDS Trust (NAT)
Magdalena Ankiersztejn-Bartczak, European AIDS Treatment Group (EATG) Member
Moderated by Caroline Sabin, Professor of Medical Statistics and Epidemiology at University College London and HIV Outcomes Co-Chair
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10:45 – 11:00 | Arrival
Attendees will be welcomed with croissants, coffee, and tea.11:00-11:10 | Setting the scene: Presentation of HIV Outcomes & Call to Action
Mario Cascio, Founding member of iCOPe HIV initiative and HIV Outcomes Co-Chair
11:10 – 11:25 | Keynote interventions
Comorbidity prevention, screening, treatment and management
Jane Anderson, Consultant Physician at Homerton Healthcare NHS Foundation Trust
Ageing with HIV
Nicoletta Policek, UK Community Advisory Board Chairperson, Executive Director at EATG, and HIV Outcomes UK Co-Chair
Measurement of person-reported outcomes (PROs) & monitoring HRQoL
Magdalena Ankiersztejn-Bartczak, European AIDS Treatment Group (EATG) Member
Combatting stigma and discrimination
James Cole, Senior Policy, Research & Influencing Manager at National AIDS Trust (NAT) and HIV Outcomes Co-Chair
11:25-11:45 | Discussion panel
James Cole, Senior Policy, Research & Influencing Manager at National AIDS Trust (NAT)
Jane Anderson, Consultant Physician at Homerton Healthcare NHS Foundation Trust
Magdalena Ankiersztejn-Bartczak, European AIDS Treatment Group (EATG) Member
Mario Cascio, Founding member of iCOPe HIV initiative and HIV Outcomes Co-Chair
Nicoletta Policek, UK Community Advisory Board Chairperson, Executive Director at EATG, and HIV Outcomes UK Co-Chair
Nikos Dedes, Positive Voice Chair
11:45-11:55 | Q&A session
Open floor for questions from attendees
11:55-12:00 | Closing remarks
Caroline Sabin, Professor of Medical Statistics and Epidemiology at University College London and HIV Outcomes Co-Chair
HIV 40 years on: Time to focus now on health-related quality of life!
To mark the 40th anniversary since AIDS was first reported and to commemorate the 25th anniversary of UNAIDS, this event explored the policy actions needed for HRQoL to become a new focus to measure and improve the well-being of those living with HIV. It is time for a paradigm shift beyond viral suppression to ensure that they, too, can enjoy full HRQoL.
Watch the replay
HRQoL lessons-learned from Covid-19 at IAS
The IAS conference is one of the world’s most influential meetings on HIV research and its applications and is attended by world-class scientists and national and EU-level policymakers interested in the latest breakthroughs in HIV and their potential application in science and policy.
HIV Outcomes organised a symposium to explore the long-term impact of Covid-19 on HIV/AIDS and what learnings from HIV treatment and care can be applied to the response to ‘long COVID.’
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Scientific experts and clinicians: Prof. Jeffrey Lazarus (ISGlobal, University of Barcelona), Prof. Jane Anderson (Homerton University Hospital), Prof. Hendrik Streeck (University of Bonn), Prof. Georg Behrens (Hannover Medical School).
Patient representatives: Mario Cascio (EATG), Nikos Dedes (Positive Voice Greece), Winnie Sseruma.
Policymakers: MP Andrew Ullmann (German Parliament), John Bowis (former UK Health Minister and European Parliament MEP).
Past Events
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Past Events *
Event highlights over the years
2021
HIV 40 years on: Time to focus now on health-related quality of life!
01 December
HRQoL lessons-learned from Covid-19 at IAS
20 July
Working Group on EU4Health funding opportunities for HIV projects
17 June
Roundtable on the HRQoL of people living with HIV in the UK
16 June
Workshop with UNAIDS: how to define HRQoL
24 February
